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Headline Politics
Advocates Discuss Fair Pharmacare Plan for Rare Disease Patients
A coalition of patients, family members and supporters hold a news conference on Parliament Hill about the challenges rare disease patients face in receiving the drugs they need through drug plans and whether a national pharmacare program will ease those challenges. Speaking with reporters are Durhane Wong-Rieger, president and CEO of the Canadian Organization for Rare Disorders, Susi Vander Wyk, executive director of Cure SMA Canada and Karen McCullagh from Cystinosis Awareness and Research Effort. (March 20, 2018) (no interpretation)