Human Rights – December 10, 2014 – Part 2

In Committee from the Senate of Canada

Human Rights – December 10, 2014 – Part 2

The committee resumes its review of Bill S-201.The purpose of the proposed legislation is to enable Canadians to have genetic testing without fear they will be vulnerable to genetic discrimination by insurance companies and others.
Clare Gibbons (genetic counsellor, North York General Hospital) and Julie Rutberg (genetic counsellor and research coordinator, University of Ottawa Heart Institute) of the Canadian Association of Genetic Counsellors, Yann Joly (associate professor, human genetics, McGill University) from the Centre of Genomics and Policy, Kathy Hibbs (chief legal & regulatory officer) of 23andme, Inc., Dr. Gail Graham (president, and chief of the department of genetics at CHEO) from the Canadian College of Medical Geneticists, and Joyce Gordon (president of Parkinson society Canada and chair of Neurological Health Charities Canada), Bev Heim-Myers (chair of the Canadian Coalition for Genetic Fairness and CEO of the Huntington Society of Canada), Richard Marceau (general counsel and senior government advisor, Centre for Israel and Jewish Affairs) and Mary Sunderland (director of research and education, Foundation for Fighting Blindness) from the Canadian Coalition for Genetic Fairness testify.
(December 10, 2014)